Porphyria Association Inc. Australia
Information for Medical Professionals This section of our website is designed for medical professionals, to provide educational material to assist in providing patients with an accurate diagnosis and long term management. The information provided is reviewed by clinicians and scientists who are experts in porphyria and who kindly volunteer their expertise. Information in this section includes; Porphyria Clinician and Scientist Working Group Expressions of Interest The Porphyria Association Inc. are looking for expressions of interest from clinicians, scientists and researchers who would be interested in participating in a working group for porphyria that is tailored to the Australasian context. This working group consists of many specialists and sub specialists who provide holistic and experienced insight into the treatment of patients with porphyria in Australia and New Zealand. The group consists of 10-15 professionals. The time commitment expected to participate in this group is determined by the professionals involved but does require attendance at an annual meeting. The group also serves as a network that allows the clinicians involved to communicate with each other and offer advice on complex cases, reducing some of the feelings of isolation felt by many clinicians treating patients with porphyria. If you would be interested in contributing to such a group, please HOW TO TEST FOR PORPHYRIA AUSTRALASIAN PORPHYRIA REFERENCE HOSPITALS contact us
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